Prof. Jane Kaye
Title of Presentation
Biomarkers in Personalized Health(care): time for quality, not quantity
Date and Place
Biobank Governance in a Time of Change
Prof. Jane Kaye DPhil, LLB, Grad Dip Leg, BA is the Director of the Centre for Law, Health and Emerging Technologies (HeLEX) at the University of Oxford and a Wellcome Trust University Award holder. She obtained her degrees from the Australian National University (BA); University of Melbourne (LLB); and University of Oxford (DPhil). She was admitted to practice as a solicitor/barrister in 1997 and is a member of the University of Oxford’s Faculty of Law. She is on a number of international expert committees and scientific advisory boards and has been on the Nuffield Council Bioethics Working Group on Biodata (http://nuffieldbioethics.org/wp-content/uploads/Biological_and_health_data_web.pdf) and Rapporteur for the EC Expert Report, “Biobanks for Europe – A Challenge for Governance, June 2012”
We live in a time of constant change and unpredictable events. Government policies change, legal requirements are reviewed, the introduction of new technologies require new forms of best practice, funding sources dry up, and there can be rapid changes in social attitudes and norms. How can biobanks develop governance structures that are responsive and adaptive to these changing and complex situations? In this paper I will comment on the changing milieu for biobanks; the concept of adaptive governance and provide examples of good governance that have emerged, such as dynamic consent and walking biobanks.