Obiajulu Nnamuchi

 

P22

Dr Obiajulu Nnamuchi

obi.nnamuchi@yahoo.com

Title of Presentation

H3Africa: An African Exemplar?

 

Date and Place

Session: Plenary P2

 

Speaker Biography

Dr. Obiajulu Nnamuchi, LL.B. (Awka), LL.M. (Notre Dame), LL.M. (Toronto), LL.M. (Lund), M.A.(Louisville), S.J.D (Loyola, Chicago) is associate professor, Faculty of Law, University of Nigeria, with teaching duties also at the Faculty of Health Sciences. He is also president at the Centre for Health, Bioethics and Human Rights (CHBHR) and director of its section on Bioethics. Dr. Nnamuchi’s scholarship focuses mainly on the intersection of law and medicine; human rights; global health; bioethics; and, health governance and financing – areas on which he has written extensively.  Some of his recent works include a five-part series respectively on the health aspects of the Millennium Development Goals (MDGs) and different dimensions of the controversy surrounding female genital ritual (FGR) or female genital cutting (FGC). Together with Brigit Toebes (author of the leading textbook The Right to Health as a Human Right in International Law), Dr. Nnamuchi is co-editor of  the book, The Right to Health: A Multi-Country Study of Law, Policy and Practice (T.M.C. Asser Press, 2014).

 

Abstract

The Human Heredity and Health in Africa (H3Africa) Consortium is a conglomeration of research and infrastructure projects spread throughout Africa whose aim is to apply genomics methodology to diseases affecting the people of Africa. Its operation is innovative in the sense that it is doing something new; that is, filling a void in genomic research capability, infusing resources and manpower to institutions and investigators across the length and breadth of Africa – a region where heretofore none existed. But aside from developing and sustaining capacity in genomic research and biorepositories, H3Africa is also invested in developing appropriate ethical regulatory regime to govern research in these areas. This latter concern –research ethics governance – is the subject of this paper.  Specifically, the paper discusses protection of research participants as envisaged by H3Africa in the area of consent, safeguarding privacy, maintaining confidentiality of health information and sharing of materials.