Title of Presentation
“Informing patients in consultation hours”
Date and Place
Sandra Seelke is a biologist with a PhD in molecular biology, focusing on tumour angiogenesis. After her PhD in the Paediatrics Department at the University Medical Centre in Göttingen (UMG), she worked as a project and quality manager at the Institute of Medical Informatics. Since June 2015 she works at the newly established Biobank in Göttingen (UMG Biobank). As head of laboratory at the UMG Biobank she is, among other things, responsible for establishing a quality management system and various biobank services, especially for internal researchers.
In the German population only little is known about biobanks, their functions or how the public can be involved. This is reflected by donors who consent to donate biomaterials without knowing what it means, dissent to the use of biomaterial or withdraw their consent. When consenting, most patients are in an exceptional situation while listening to the physician during a pre-operation discussion. Moreover, it is probably the first time they hear about a biobank and the possibility to donate biomaterial to support medical research. To minimize the lack of information a biobank consultation hour could be offered by biobanks. Here, we describe, how it should be organised. We implemented a two-hour consultation once a month, where patients and other interested people can be advised on biobanking. Several questions arose for the preparation of this consultation hour, e.g. regularity of the consultation hour, to determine a time frame, a way to advertise it or the atmosphere it takes place in. In general, the structure of a consultation hour has to be planned and elaborated carefully. In the currently running pilot phase, key to success seems to be to prepare the information for different groups of people, according to their prior knowledge. Experiences with regard to consultation hours conducted and prepared so far make it possible for the conferrer to give an advice more specifically to different groups. In the future, this will hopefully result in patients making informed decisions on the donation of their biomaterials.