Rare diseases, which affect fewer than 1 in 2,000 people, pose unique challenges to research and healthcare, often due to limited sample availability and the diverse nature of these diseases. In this session, we will explore the intricacies of biobanking and its key role in accelerating rare disease research as well as the active contribution of rare disease patients to […]
Medical studies based on data of unknown or questionable quality are useless or even dangerous, as shown by recent examples of withdrawn studies. In this session, there will be a discussion on innovative quality dimensions for data sets linked to biobanks and proposed representations of both metadata and data quality documentation to help researchers effectively and efficiently identify suitable data […]
It is our pleasure to introduce Prof. Dr. Lili Milani from the University of Tartu as the second keynote speaker at #EBW25. The subject of the keynote will be ‘Bringing the benefits of biobanking closer to the people’. Prof. Dr. Lili Milani Prof. Dr. Milani is the Head of the Estonian Biobank and professor of pharmacogenomics at the University of […]
We are honored to announce that the first keynote of #EBW25 will be delivered by Prof. Walter Ricciardi, Cancer Mission Board Chair (EC) and Chair of the BBMRI-ERIC Scientific and Ethical Advisory Board. The subject of the keynote will be ‘The need for courageous leadership in science and health in challenging times’. Prof. Walter Ricciardi Prof. Walter Ricciardi is a […]
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